A little bit more about me and my condition.

Hey guys! I hope you’ve all had a brilliant Christmas and a Happy New year! I can’t believe that it is 2025 its crazy times just flying by its quiet scary actually if you think about it. Anyway enough of me rambling on let’s talk about me and this blog. So I’ve been blogging since the start of 2023 and I was using WIX but I’ve been hearing so much great things about WordPress that I decided to transfer over to here. I’ve always wanted to blog ever since I was 16 but I never knew where to start. So I’ve been doing a lot of research and I’ve finally figured out what to write about. Ill be writing all about my experience and what its like in a wheelchair.

So when I was 13 in 2016, my life change completely. From going to school and having loads of friends and being independent, to being wheelchair bound and not being able to fend for myself it’s just life changing it really is. Ever since I was younger, I always wanted to be a writer or do you know one of them people who interview celebrities on TV? I wanted to be one of them. I love watching them videos. I don’t know why. But since losing My voice I can’t do that anymore. I then started thinking about, why not write tips and tricks that will help all kind of disabilities because when I first got injured I realised that there wasn’t much information out there so then I started to read other people’s blogs and there experiences. I thought it was really interesting so I thought about starting my own one combining it with an wheelchair blog writing about my experience to also writing about celebrity news and the entertainment industry and so on.

How I coped Adjusting to Life in a Wheelchair and not being able to speak

Honestly, it’s been incredibly hard. Years later, I’m still struggling to fully accept that I rely on a wheelchair, and if I’m being honest, there are days I feel like I haven’t accepted it at all. The challenges we’ve faced along the way have been overwhelming. When I first came home from Tadworth, we had to make major changes to the entire house just so I could get around. Everything had to be adapted—my garden, the interior doors, ramps everywhere. At one point, Pollock installed a lift for me, but it caused more problems than I ever could have imagined. It broke multiple times, including once when the bottom part collapsed while I was inside. My brother had to hold up the bottom to keep me from falling through. It honestly felt like something straight out of a horror movie, and it wasn’t an isolated incident. Eventually, we had to build an extension for my room on the ground floor to avoid relying on the lift. And then there’s the issue with carers. We’ve had so many carers over the years who simply didn’t know what they were doing. I don’t even know where to start with that—there are too many stories of frustration, discomfort, and even danger. After the surgery, I lost so many friends its hard to count. Only two of my best friend’s stayed with me and I’m beyond grateful for that because if,they didn’t I wouldn’t of coped. In 2017 when I first came home I had zero confidence, I hardly left the house as I was scared in case I bumped into people I knew. Some people started to drift away from me. It just wasn’t a great time for me back then. Things started to get a little better around 2019 but then covid hit and once again I lost my confidence. Back in 2023 I started college and I am the happiest I have ever been. People just understand me they just get me. I can be myself when I’m there. Going to this college that I am at today is one of the best decision of my life Learning to live like this has been a long, difficult journey, and we’re still dealing with challenges. But every day, I’m working toward finding a way to make it manageable.

What caused the surgery to deteriorate?

So my life hasn’t been easy whatsoever even before the surgery. Countless of hospital appointments, MRI scans, CT scans, surgery’s everything. My first ever surgery was when I was a baby which was heart surgery. When I turned 7 I was then experiencing sleep apne which is where I hold my breath in my sleep, Head aches and neck pain. As I grew up these symptoms become worse and worse until I could barely walk. This was when they decided to undergo the surgery. Well that was the biggest mistake of my life. I lost all of my independence, my confidence was completely gone. It was a very hard year. When they did the surgery, They had to remove a bone called the odontoid bone but during they had to leave a gap as it was to dangerous to remove it completely. So what happened the brainstem slipped into the gap which then created pressure on my spinal cord. This then explained why I was deteriorating so much. It was definitely a very scary experience.

What does life look like now 8 years later?

How has it been 8 years already, sitting in that hospital bed I didn’t know what my life was going to look like. I never imagined I would be where I am today thats for sure. Its been such a journey full of laughter, frustration, happiness and meeting so many new people. I told myself that I would keep working hard and who knows where ill be in the next 10 years and I can’t wait to find out. Sharing My Story to Help Others After my injury, I quickly discovered how little information is available, especially concerning accessibility. Visiting new places can be daunting when you’re unsure if they’ll meet your needs. That’s why I decided to start this blog—to share my experiences and insights. My hope is that it will help others navigate these challenges more easily and avoid the frustrations I’ve faced.

Love Robyn

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